My name is Lindy and I thank you for visiting my blog about SCA. SCA is an acronym for Spinocerebellar Ataxia which is an hereditary disease that causes the part of the brain called the cerebellum to shrink. It is quite rare and it has only recently become detectable through DNA testing so chances are that your GP has not even heard of it. There is not much information for SCAs (pronounced scars) sufferers around at this time and this is part of the reason why I have established this blog, because I do not want anyone else to have to go through what I have been through over the past 5 years with strange, debilitating neurological symptoms and no firm diagnosis.

I have only been diagnosed with SCAs since June 2008 so I am a newcomer to this disease and cannot claim to understand all of the brain science involved in SCAs at this point. However, I would like to help others who have been newly diagnosed with SCAs or who have strange, as yet undiagnosed neurological symptoms that look like SCAs. You will find a detailed description of SCAs symptoms and signs in the ‘about’ and ‘living with SCAs’ pages of this blog. If you think it all sounds familiar, email me using the ‘contact’ link and I will endeavour to get in touch with you as soon as possible.

I am not particularly web-savvy but I am keeping this blog with the help of Phil Wiley, who is my neighbour and dear friend. Phil makes a very lucrative living from the internet and has a range of resources on his websites that help others make money through the web. As a SCA sufferer, I realise that it is only a matter of time until I will not be able to continue in my teaching job. When that time comes I will be seeking Phil’s help to derive some of my income from the internet which Phil says ‘anybody can learn to do’. Thank-you Phil, I’m looking forward to that!